EKHA – European  Kidney Health Alliance

DG Research - Kidney regeneration...science and song

European Commission - Information

Chronic kidney disease (CKD) is a progressive fibrosis or hardening of this important organ that can lead to renal failure and death. It currently affects 8 % of Europeans, and 10 % of Australian adults show signs of CKD, such as reduced kidney function and/or albumin in the urine.

More patients than ever rely heavily on kidney dialysis, which can cost up to 80 000 euro a year. While transplantation is more cost-effective, the increasing age and number of people with end-stage renal failure, and shortage of available organs, means dialysis remains vital.

With alternatives limited and costs mounting on healthcare systems, even a small improvement in therapies could make a big difference, as outlined in a cost model study performed by the EU-funded STELLAR project. An international cooperation between high-level academic institutions in Europe and Australia, STELLAR focused attention on an alternative to renal replacement therapy that harnesses the innate repairing abilities of a newly-discovered cell type, called kidney perivascular stromal cells (kPSCs).
The WHO Europe has launched its new action plan for chronic diseases, and is appealing for urgent joint policy action from individual countries to achieve global goals and targets. We highly recommend you share this within your networks and we will be exploring how EKHA can use this as a policy driver.

The new Action Plan for NCDs, is structured around 2 objectives for European region countries:
  • To take integrated action on risk factors (smoking, alcohol misuse, poor diet, inactivity etc) and their underlying determinants across sectors
  • To strengthen health systems for improved prevention programmes and control of NCDs
The European Kidney Health Alliance is a European nonprofit organization whose main objectives are to support the implementation of health strategies to limit the progression of kidney disease amongst European citizens and to promote a European health environment demonstrating a constant increase in “quality of life and life expectancy” of patients with kidney disease.
EKHA provides a unique multidisciplinary platform for patients, nurses and doctors. It has been set up to facilitate research, clinical practice, education, and promotion of the best possible treatment among all kidney health stakeholders.

EKHA articulates its mission around five fundamental objectives

  • Raise awareness of kidney disease and the need for action (particularly in relationship with cardiovascular disease and diabetes);
  • Facilitate exchange of information between the EU Kidney Health Community and the EU institutions and bodies in charge of health policy regarding priorities for the prevention of kidney disease;
  • Promote the exchange of best practice for patient care as well as education and training between therapists, nurses and patients throughout the EU-27 Member States (with particular focus on kidney and cardiovascular disease, diabetes and hypertension);
  • Support the aim of enhancing European medical research to develop and enhance therapies to benefit kidney patients;
  • Work in cooperation with other EU Health Platforms addressing areas directly linked to the effect or cause of renal failure such as diabetes, cardiovascular disorders, hypertension and transplantation.

EKHA Health Policy commitments for the European Union

  • EKHA will provide advice regarding European Union research policies and programmes in order to identify the most effective Kidney Disease topics for which EU Medical Research Projects could deliver real and effective therapy progress.
  • EKHA will maintain the dialogue with EU Health bodies to promote best practice in addressing the care of kidney patients.
  • EKHA commits to maintaining constant best practice on early detection and prevention methods amongst the kidney health community in Europe and to promoting awareness of such methods to the general public.

For more information, see: www.ekha.eu

News from EKHA & EU, European Reference Networks: Opportunity for EKHA members pdf

The Organization
The EKHA is composed of the 5 following non-profit organizations:
  • CEAPIR – European Kidney Patients’ Federation
  • EDTNA/ERCA – European Dialysis and Transplant Nurses Association/ European Renal Care Association
  • ERA-EDTA – European Renal Association – European Dialysis and Transplant Association
  • IFKF – International Federation of Kidney Foundations
  • ISN – International Society of Nephrology
The alliance aims at extending its multidisciplinary approach in the future by welcoming other organizations sharing the same vision and objectives.
Increase in kidney donations and transplantations thanks to EU Action Plan 2008-2015
The commission released an impact assessment report on the outcomes of its EU Action Plan on Organ Donation and Transplantation 2008-2015.
EKHA Summary Report December 2017 EU Action Plan 2009-2015
Chronic Disease Alliance launches Call to Action on Employment
The European Chronic Disease Alliance, presided over by EKHA Chairman Prof Raymond Vanholder, yesterday launched policy recommendations to increase employment opportunities for the 1 in 4 Europeans of working age who suffer from a chronic condition. Prof Vanholder officially presented the Call to Action to the European Commission during the EU Health Policy Platform Forum in Brussels yesterday, organised by the European Commission DG SANTE. Prof Vanholder’s presentation can be viewed online here (minute 58:45—1:21:30).

Over the last year the European Chronic Diseases Alliance has been leading a thematic network on the topic of the employment of people with chronic diseases on the EU Health Policy Platform hosted by the European Commission. The Call to Action represents the culmination of this work. To date 25 organisations from the health, social and employment sectors have endorsed in the work.
Boosting the retention and return-to-work of employees with chronic diseases Infographic on CHRONIC DISEASE & WORK
European Kidney Forum 2017
The 2017 European Kidney Forum took place on the 11th of April in Brussels, hosted by the MEP Group for Kidney Health. This year’s edition focused on the second cluster of EKHA recommendations on sustainable kidney care: Patient Choice of Treatment.
It was the occasion to present the results of EKHA survey on renal patients’ choice of treatment in Europe and discuss the importance of patient-centred decision-making, the health economic factors behind treatment choice; and how to address health inequalities across Europe and improve access to care. 

A short Forum summary video of the event is available on the EKHA YouTube channel here and on the EKHA website here.

Read the event outcome report.
EKHA Summary Report 2017
European Parliament Committee on Environment, Public Health and Food Safety
On April 24th, Members of the European Parliament Environment and Public Health Committee held an exchange of views with the European Commission Unit responsible for Organ Donation and Transplantation. The representative of the Commission called organ donation and transplantation a ‘true EU success story’ in terms of cross-border collaboration and sharing of best practices, as numbers have been increasing since the implementation of the EU Action Plan. Please note as well that the EDITH pilot project was mentioned as a prime example.

In numbers:
  • In 2015, more than 10,000 organ donations took place across the bloc, resulting in 33,000 organ transplants, a 29 percent increase compared to 2006.
  • Living donations have also increased significantly, by 56 percent while deceased donors registered a plus 21 percent.
  • The best-performing countries are Spain and Croatia, with 40 donations from deceased donors per 1 million inhabitants. When it comes to living donors, the leaders are The Netherlands and the U.K.

Read the full summary of the Commission’s presentation as well as Q&A from MEPs.

World Kidney Day 2017
Latest news from EKHA - 6 major food companies... Read more
European Commission launches database for scientific experts in the field of health, consumer safety and the environment. 
Database for scientific experts Recommendations Sustainable Kidney Care Commission 2014 World Kidney Day 2014 2014 EU Summit on Chronic Diseases Public Health Programme 2014 Health for Growth Programme 2014
EDTNA/ERCA Secretariat

Källstorps Gård / Högs Byväg 118 / SE-246 55 Löddeköpinge / Sweden
Phone: +46 46 70 96 24 / secretariat@edtnaerca.org

Head Office

EDTNA/ERCA, Seestrasse 91, CH 6052 Hergiswil, Switzerland